Did You Know...?
Folic Acid: The Best Hope for Prevention
400 micrograms of folic acid every day can reduce the risk of a baby being born with Spina Bifida by as much as 70%.
Helpful Links
The following is a list of organizations and agencies that may prove useful*. Please send us e-mail if you discover a site that we should include on our Links Page or if you find that one of our listed links has expired.
*SBA of IL is not responsible for the content of any web sites listed.
*We recommend using discretion when sharing personal information in chat rooms.
Information Links
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Spina Bifida Association of America
4590 MacArthur Blvd., NW, Suite 250
Washington, DC 20007-4226
800-621-3141, 202-944-3285
http://www.spinabifidaassociation.org/
March of Dimes
111 West Jackson, Suite 2200
Chicago, IL 60604
312-435-4007
www.modimes.org
Alliance for Technology Access
1304 Southpoint Blvd., Suite 240
Petaluma, CA 94954
707-778-3011
www.ataccess.org
Americans with Disabilities Act Disability and Business Technical Assistance Centers (DBTACs)
The DBTACs provide information, referral, TA, and training on the ADA.
800-949-4232
www.dbtac.vcu.edu
The ARC National Employment &Training Program
400 E. Border, Suite 300
Arlington, TX 76010
800-433-5255, 918-277-0553(TTY)
www.thearc.org
Easter Seals National Headquarters
230 W. Monroe, Suite 1800
Chicago, IL 60606
800-221-6827, 312-726-6200
www.easter-seals.org
Council for Exceptional Children, Division on Career Development and Transition
1920 Association Drive
Reston, VA 20191-1589
703-630-3660, 703-264-9446(TTY)
www.cec.sped.org
The National Clearinghouse on Postsecondary Education for Individuals with Disabilities (HEATH)
2121 K Street, NW Suite 220
Washington, DC 20037
800-544-3284, 202-973-0904
www.heath.gwu.edu
The Job Accommodations Network (JAN)
PO Box 6080
Morgantown, WV 26506-6080
800-526-7234, 304-293-7186
janweb.icdi.wvu.edu
Mobility International USA (MIUSA)
PO Box 10767
Eugene, Oregon USA 97440
541-343-1284
www.miusa.org
National Council on Independent Living
1710 Rhode Island Avenue, NW 5th Floor
Washington, D.C. 20036
877-525-3400, 202-207-0334
www.ncil.org
National Information Center for Children and Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
800-695-0285
www.nichcy.org
National Transition Alliance for Youth with Disabilities, Transition Research Institute, University of Illinois
College of Education, University of Illinois at Urbana-Champaign
113 Children's Research Center, 51 Gerty Drive
Champaign, IL 61820
217-333-2325
www.ed.uiuc.edu/SPED/tri/institute.html
Office of Disability Employment Policy
U.S. Department of Labor
Frances Perkins Building
200 Constitution Avenue, NW,br />
Washington, DC 20210
866-633-7365, 877-889-5627 (TTY)
www.dol.gov/odep
Equip for Equality
20 N. Michigan Avenue, Suite 300
Chicago, IL 60602
800-537-2632, 800-610-2779 (TTY)
www.equipforequality.org
The Illinois Division of Specialized Care for Children (DSCC)
The Illinois DSCC helps to fund the cost of medical care for children with special
health care needs ages 0-21. Funding is based on financial and medical need.
www.uic.edu/hsc/dscc
The Spina Bifida Research Resource (SBRR)
The SBRR is a project, funded by the National Institutes of Health, to study the causes of Spina Bifida
and anencephaly. No travel is required and there are no costs associated with joining the SBRR.
www.sbrr.info
Other Links
Links to services and agencies that may be of interest.
Easy Access Chicago
http://easyaccesschicago.org/information/
Care Pages
CarePages are free, easy-to-use Web pages that help family and friends communicate when a loved one is receiving care. It takes just a few minutes to create a CarePage, share it with friends and family, and build a community of support.
www.carepages.com
Great Lakes Adaptive Sports Association (GLASA)
GLASA provides adaptive sports opportunities, education, leadership, and training for youth and adults with physical or visual impairments. Located in Lake Forest, GLASA largely serves Lake County, Cook County, and Southern Wisconsin.
www.glasa.org/
Western DuPage Special Recreation Association (WDSRA)
WDRSA offers adaptive sports for all ages, along with trips, events, and social programs. Located in Carol Stream, they serve the areas of Bloomingdale, Carol Stream, Glen Ellyn, Naperville, Roselle, Warrenville, West Chicago, Wheaton, and Winfield.
www.wdsra.com
National Center on Physical Activity and Disability (NCPAD)
NCPAD serves as a resource for information on physical activity, health promotion, and disability. If you're looking for factsheets, video clips, discussion groups, or events check out their site.
www.ncpad.org
South Suburban Special Recreation Association (SSSRA)
SSSRA offers individuals (birth through adulthood) with disabilities or special needs the opportunity to be involved in year-round recreation & classes. Located in Tinley Park , they serve from Country Club Hills to Frankfort Square to Richton Park.
www.sssra.org
Parent Advocacy Coalition for Educational Rights (PACER)
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
www.pacer.org
South East Assocation for Special Parks And Recreation (SEASPAR)
SEASPAR is a special recreation association in Downers Grove, IL that offers recreation programs for individuals with disabilities throughout 11 communities.
www.seaspar.org
MDJunction
MDJunction is a health community focused on becoming a free center for Online Support Groups.
mdjunction.com/permanently-disabled
Yahoo Groups
Bifida-chat
http://health.groups.yahoo.com/group/bifida-chat/
This is a list for people whose lives are affected by Spina Bifida. Although the main focus is to educate ourselves and each other about Spina Bifida, members are welcome to discuss any topic, regardless of relevance to Spina Bifida.
Sb_adults
http://groups.yahoo.com/group/sb_adults/
This list is intended for adults with Spina Bifida. The target age is 18-180. Subjects range from dating to just needing someplace to vent for a few minutes. You must be at least 18 years of age to join!
Bifida-l
http://health.groups.yahoo.com/group/bifida-l/
This is a list for people whose lives are affected by Spina Bifida. Although the main focus is to educate ourselves and each other about Spina Bifida, members are welcome to discuss any topic, regardless of relevance to Spina Bifida.
SBAA-YAA
The YAA is a link for adults with Spina Bifida, young and old, to communicate with each other about a wide range of issues of common interest.
Add Yourself to the ListServ:
Send an email to: YAA-on@lists.sbaa-communities.org.
Leave the subject line and the body blank.
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