Spina Bifida Association of Illinois
Did You Know...?
Folic Acid: The Best Hope for Prevention
400 micrograms of folic acid every day can reduce the risk of a baby being born with Spina Bifida by as much as 70%.
Join Our Mailing List
Communication sent includes the SBAIL Newsletter, event updates and information.
Helpful Links
The following is a list of organizations and agencies that may prove useful*. Please send us e-mail if you discover a site that we should include on our Links Page or if you find that one of our listed links has expired.
*SBA of IL is not responsible for the content of any web sites listed.
*We recommend using discretion when sharing personal information in chat rooms.
Paratransit and Parking Information
Driving Rehabilitation Programs
Special Needs Legal Assistance
Information Links
Links will open in a new window
Spina Bifida Association of America
4590 MacArthur Blvd., NW, Suite 250
Washington, DC 20007-4226
800-621-3141, 202-944-3285
Alliance for Technology Access
1304 Southpoint Blvd., Suite 240
Petaluma, CA 94954
707-778-3011
Americans with Disabilities Act Disability and Business Technical Assistance Centers (DBTACs)
The DBTACs provide information, referral, TA, and training on the ADA.
800-949-4232
The ARC National Employment &Training Program
400 E. Border, Suite 300
Arlington, TX 76010
800-433-5255, 918-277-0553(TTY)
1920 Association Drive
Reston, VA 20191-1589
703-630-3660, 703-264-9446(TTY)
Easter Seals National Headquarters
230 W. Monroe, Suite 1800
Chicago, IL 60606
800-221-6827, 312-726-6200
Council for Exceptional Children, Division on Career Development and Transition
Promotes efforts to improve the quality of and access to career/vocational and transitional services, increases the role of education in career development and transition goals, and influences policies affecting services for persons with disabilities.
Equip for Equality
20 N. Michigan Avenue, Suite 300
Chicago, IL 60602
800-537-2632, 800-610-2779 (TTY)
The Illinois Division of Specialized Care for Children (DSCC)
The Illinois DSCC helps to fund the cost of medical care for children with special
health care needs ages 0-21. Funding is based on financial and medical need.
The Job Accommodations Network (JAN)
PO Box 6080
Morgantown, WV 26506-6080
800-526-7234, 304-293-7186
March of Dimes
111 West Jackson, Suite 2200
Chicago, IL 60604
312-435-4007
Mobility International USA (MIUSA)
PO Box 10767
Eugene, Oregon USA 97440
541-343-1284
The National Clearinghouse on Postsecondary Education for Individuals with Disabilities (HEATH)
2121 K Street, NW Suite 220
Washington, DC 20037
800-544-3284, 202-973-0904
National Council on Independent Living
1710 Rhode Island Avenue, NW 5th Floor
Washington, D.C. 20036
877-525-3400, 202-207-0334
National Information Center for Children and Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
800-695-0285
National Transition Alliance for Youth with Disabilities, Transition Research Institute, University of Illinois
College of Education, University of Illinois at Urbana-Champaign
113 Children's Research Center, 51 Gerty Drive
Champaign, IL 61820
217-333-2325
Office of Disability Employment Policy
U.S. Department of Labor
Frances Perkins Building
200 Constitution Avenue, NW,
Washington, DC 20210
866-633-7365, 877-889-5627 (TTY)
The Spina Bifida Research Resource (SBRR)
The SBRR is a project, funded by the National Institutes of Health, to study the causes of Spina Bifida
and anencephaly. No travel is required and there are no costs associated with joining the SBRR.
Groups and Mailing Lists
Bifida-chat
This is a list for people whose lives are affected by Spina Bifida. Although the main focus is to educate ourselves and each other about Spina Bifida, members are welcome to discuss any topic, regardless of relevance to Spina Bifida.
Sb_adults
This list is intended for adults with Spina Bifida. The target age is 18-180. Subjects range from dating to just needing someplace to vent for a few minutes. You must be at least 18 years of age to join!
Bifida-l
This is a list for people whose lives are affected by Spina Bifida. Although the main focus is to educate ourselves and each other about Spina Bifida, members are welcome to discuss any topic, regardless of relevance to Spina Bifida.
SBAA-YAA
The YAA is a link for adults with Spina Bifida, young and old, to communicate with each other about a wide range of issues of common interest.
Send an email to: YAA-on@lists.sbaa-communities.org. Leave the subject line and the body blank.
Sports and Recreation
Links to services and agencies that may be of interest.
Adaptive Adventures
230 Greenleaf Avenue
Wilmette, IL 60091
847-251-8445
Contact Adaptive Adventures
Athletes Helping Athletes
5549 Copley Drive
San Diego, CA 92111
888-566-5221
Blaze Sports
280 Interstate North Circle, Suite 450
Atlanta, Georgia 30339
770-850-8199
Caring for Kids (Plus Karate and Yoga)
Rehabilitation Institute of Chicago Sports
710 N. Lakeshore Dr. 3rd Fl.
Chicago, IL 60611
312-238-5010
Contact Jenny DiLaura
Challenged Athletes Foundation
9990 Mesa Rim Rd
San Diego, CA 92121-3932
858-866-0959
*Grants for sports equipment.
Champaign-Urbana Special Recreation (CUSR)
1311 W. Church Street
Champaign, IL 61821
Phone: 217-398-2374
Fax: 217-373-7951
Chicago Park District- Special Recreation
541 N. Fairbanks, 4th floor
Chicago, IL 60611
Contact Gerry Henaghan
Chicago Park District- Adaptive Sports Program
Dan Ferreira, Program Facilitator
312-742-5670
Contact Daniel Ferreira
Cowboy Dreams
112 Wool Street
Barrington, IL 60010
847-381-9323
Contact Cowboy Dreams
Creative Mobility
2930 Campton Hills Rd
St.Charles, Illinois, 60175
630-587-8100
*Adapted bikes
DeKalb Sycamore Association of Special Recreation (DSASR)
1403 Sycamore Rd.
Champaign, IL 61821
815-758-6663 x122
The Diveheart Foundation
900 Ogden Ave #274
Downers Grove, IL 60515
630-964-1983
Equestian Connection, NFP
600 Bradley Rd.
Lake Forest, IL 60045
Mailing Address:
872 S. Milwaukee, #273
Libertyville, IL 60048
847-615-8696
Fox Valley Special Recreation Association (FVSRA)
2121 W. Indian Trail
Aurora, IL 60506
Phone: 630-907-1114
Fax: 630-907-1116
Gateway Special Recreation Association (Gateway)
15W431 59th St.
Burr Ridge, IL 60527
Phone: 630-325-3857
Fax: 630-325-3891
Contact Gateway
Great Lakes Adaptive Sports Association (GLASA)
400 E. Illinois Rd.
Lake Forest, IL 60045
847-283-0908
GLASA Wave Wheelchair Basketball Team
847-283-0908
Hand Cycle Rentals
239 E. Randolph Street
Chicago, IL 60602
888-BIKE-WAY
Heart of Illinois Special Recreation Association (HISRA)
8727 N. Pioneer Rd.
Peoria, IL 61615
Phone: 309-691-1929
Fax: 309-691-4383
Contact HISRA
The Hornets Sled Hockey Program
Edge Ice Arena
735 E. Jefferson St.
Bensenville, IL 60106
847-778-9019
Contact JJ O'Connor
Illinois River Valley Special Recreation Association (IRVSRA)
201 Veterans Dr.
Easdt Peoria, IL 60611
Phone: 309-699-3923
Fax: 903-699-3419
Judd Goldman Adaptive Sailing Program
(Summer Address)
Burnham Harbor
1362 Lynn White Drive
Chicago, IL 60605
312- 747-7684
Contact Judd Goldman Adaptive Sailing
Joliet-Bolingbrook Special Recreation Association (JBSRA)
230 E. Briarcliff
Bolingbrook, IL 60440
Phone: 630-739-1300
Phone 2: 630-739-0272
Phone 3: 630-739-1124
Fax: 630-7395806
Junior Wheelchair Bulls Blaze Basketball
1770 W. Centennial Place
Addison, IL 60101
630-620-4500, x137
Contact Adam Kramer
Keen Chicago
P.O. Box 06255
Chicago, IL 60606
312-876-2535
Contact Keen Chicago
Programs located at:
High Ridge YMCA
2424 W. Touhy
Chicago, IL 60645
773-262-8300
Lincolnway Special Recreation Association (LWSRA)
P.O. Box 547
Frankfort, IL 60423
Phone: 815-464-2811
Fax: 815-464-2813
Little League Challenger Division
Sam Ranck
570-326-1921 ext. 254
Contact Little League Challenger Divison
Little League Challenger Division- Elgin
Northeast corner of Summit -Rt. 58 & Hiawatha in Elgin
847-741-9283
Contact Conan Stoehr
Maine-Niles Assocation of Special Recreation (MNASR)
6820 W. Dempster St.
Morton Grove, IL 60053
Phone: 847-966-5522
Fax: 847-966-8340
Midwest Wheelchair Sport and Social Club
(Basketball, softball, tennis, outings and more...)
Keith Wallace
Dolton Park District
715 Engle
Dolton, IL 60419
773-220-4522
The Miracle League Association- Baseball
1506 Klondike Road - Suite 105
Conyers, GA 30094
770 760-1933
*Check the website for leagues in your community.
The Miracle League of Joliet
320 Water Stone Way - Suite 100
Joliet, IL 60431
815-258-3799
815-744-3041
National Wheelchair Basketball Association (NWBA)
c/o Executive Director Todd Hatfield
6165 Lehman Drive, Suite 101
Colorado Springs, Colorado 80918
719-266-4082
Contact Todd Hatfield
National Wheelchair Softball Association
6000 West Floyd Avenue #110
Denver, CO 80227
303-842-1229
The National Center on Physicla Activity and Disability (NCPAD)
1640 W. Roosevelt Road
Chicago, IL 60608
800-900-8096
Teens on the Move: An Exercise Video for Teens with Spina Bifida (NCPAD)
Order here or call 800-900-8086
The National Sports Center for the Disabled (NSCD)
P.O. Box 1290
Winter Park, Colorado 80482
970.726.1540
NCSD: Ability League
1801 Bryant St. #1500
Denver, CO 80204
800-289-2071
Contact Scott Damerson
*Soccer Program for Ambulatory Kids with Physical Disabilities
Northeast DuPage Special Recreation Association (NDSRA)
1770 W. Centennial Pl.
Addison, IL 60101
Phone: 630-620-4500
Fax: 630-620-4598
Northern Illinois Special Recreation Association (NISRA)
820 E. Terra Cotta, Suite 125
Crystal Lake, IL 60014
Phone: 815-459-0737
Fax: 815-459-0388
Northern Suburban Special Recreation Association (NSSRA)
3105 MacArthur
Northbrook, IL 60062
Phone: 847-509-9400
Fax: 847-509-1177
Northlands Special Recreation Association (NSRA)
401 S. Main St.
Rockford, IL 61101
Phone: 815-987-1600
Fax: 815-987-1607
Northwest Special Recreation Association (NWSRA)
3000 W. Central Rd., Suite 205
Rolling Meadows, IL 60008
Phone: 847-392-2848
Fax: 847-392-2870
Oak Lawn Park District/Special Recreation Cooperative
4625 W. 110th St.
Oak Lawn, IL 60453
Phone: 708-857-2200
Fax: 708-857-7614
Peoria Wildcats Wheelchair Basketball Team
Contact Katie Hogan
309-691-1929
River Valley Special Recreation Association (RVSRA)
1335 E. Broadway
Bradley, IL 60915
Phone: 815-933-7336
Fax: 815-933-4632
Contact RVSRA
Rehabilitation Institure of Chicago: Galvin Health and Fitness Center
710 N. Lakeshore Drive, 3rd Fl.
Chicago, IL 60611
312- 238- 5002
Rehabilitation Institute of Chicago: Junior and Adult Sports Programs
Trent Thenhaus
345 E. Superior Street, First Floor
Chicago IL 60611
312-238-5433
Rehabilitation Institute of Chicago: Life Center
345 E. Superior Street, First Floor
Chicago IL 60611
312-238-5433
*The Life Center helps you locate disability organizations, government agencies, support groups, and health information on key areas of life.
Rockford Junior Chariots Wheelchair Basketball Team
815-459-9737
Contact Rockford Jr. Chariots
*Please put Jr Chariots in the subject line.
Rollin' Hoosiers Wheelchair Basketball Team
Jean Shepherd Community Center
3031 J.F. Mahoney Drive
Hammond, Indiana 46323
219-746-0269
Contact Rollin' Hoosiers
Contact Mary Martinez
Special Recreation Cooperatives
Special Recreation Association of Central Lake County (SRACLC)
290 Oakwood Rd.
Vernon Hills, IL 60061
Phone: 847-816-4866
Fax: 847-816-4876
Special Recreation Services (SRS)
1624 E. 154th St.
Dolton, IL 60419
Phone: 708-841-1071 x233
Fax: 708-841-1053
Special Recreation Services of Joliet and Channahon (SRJC)
3000 W. Jefferson St.
Joliet, IL 60435
Phone: 815-741-7275 x196
Fax: 815-741-7280
Special Recreation Services of Northern Lake County (SRANLC)
814 Hart Rd., Round Lake, IL 60073
Phone: 847-546-8558; Fax: 847-740-8180
2400 Dowie Memorial Dr., Zion, IL 60099
Phone: 847-746-5500; Fax: 847-746-5506
2200 E. Gradd Lake Rd., Lindenhurst, IL 60046
Phone: 847-356-6011; Fax:847-356-6063
2000 Belvidere St., Waukegan, IL 60085
Phone: 847-360-4760; Fax: 847-662-2577
South East Assocation for Special Parks And Recreation (SEASPAR)
SEASPAR is a special recreation association in Downers Grove, IL that offers recreation programs for individuals with disabilities throughout 11 communities.
South Suburban Special Recreation Association (SSSRA)
19910 80th Ave.
Tinley Park, IL 60477
Phone: 815-806-0384
Fax: 815-806-0390
South West Suburban Special Recreation Association (SWSRA)
12521 S. Kostner Ave.
Alsip, IL 60803
Phone: 708-389-9423
Fax: 708-389-6458
Tri County Special Recreation Association (Tri County)
16028 127th St.
Lemont, IL 60439
Phone: 630-257-6787
Fax: 630-257-6944
*Check the website for other locations.
University of Illinois Adapted Sports Camps
1207 South Oak St.
Champaign, IL 61820
217-333-4606
Contact UIUC Sports Camps
Warren Special Recreation Association (WRSA)
17801 W. Washington St.
Gurnee, IL 60031
Phone: 847-244-6619
Fax: 847-855-8687
Western DuPage Special Recreation Association (WDSRA)
116 N. Schmale Rd.
Carol Stream, IL 60188
Phone: 630-681-0962
Fax: 630-681-1262
West Suburban Special Recreation Association (WSSRA)
2915 Maple St.
Franklin Park, IL 60188
Phone: 847-455-2100
Fax: 847-455-2157
VARIETY- The Children's Charity of Illinois
200 E. Randolph Street, Suite 2200
Chicago, Illinois 60601-6436
312-822-0660
*Grants for adaptive equipment
Wheelchair Sports, USA
1236 Jungermann Rd., Suite A
St. Peters, MO 63376
636-614-6784
Windy City Warriors Wheelchair Basketball Team
(Softball, tennis, weightlifting, sled hockey, and many more…)
Special Recreation Association
116 N. Schmale Road
Carol Stream, IL 60188
630-681-0962
YMCA of the USA
101 North Wacker Drive
Chicago, IL 60606
800-872-9622
*Locate your local YMCA.
Housing
Alden Health Care & Senior Living
Multiple locations throughout the Chicagoland area, Rockford and southern Wisconsin
773-286-3883
Alden Health Care & Senior Living has 38 locations throughout the Chicagoland area, Rockford and
southern Wisconsin including Intermediate Care Facilities for the Developmentally Disabled and
Assisted Living Facilities.
Eden Supportive Living
940 West Gordon Terrace
Chicago, IL 60613
773-472-1020
Eden Supportive Living offers assisted living housing for physically disabled individuals ages 22-64,
combining apartment-style housing with personal care and services.
Paratransit and Parking Information
Medical Supply Companies
Classic Care Medical
Located at Rehabilitation Institute of Chicago
345 E. Superior St.
Chicago, IL 60611
Phone: 312-238-6520 (AT RIC)
Phone: 866-261-2179
Fax: 888-733-9301
Ostomy Center
9245 S. Ashland Ave
Chicago, IL 60617
Phone: 773-783-4600
Fax: 773-783-83
Xtreme Medical
Phone: 877-469-6647
Fax: 562-803-9433
180 Medical
Phone: 888-688-2729
Fax: 888-718-0633
Wheelchairs and Equipment
Rehab Tech
1572 Shore Road
Naperville, IL 60563
Phone: 630-420-8585
Fax: 630-420-3175
RIC Wheelchair and Seating Clinic
345 E. Superior St.
Chicago, IL 60611
Phone: 312-238-2998
Fax: 312-238-6040
Orsini
1111 Nicholas Blvd
Elk Grove Village, IL 60007
Phone: 847-860-0240
Fax: 847-238-9023
Orthotic Vendors
Children's Memorial Hospital Orthotics
2515 N. Clark St., Suite 802
Chicago, IL 60614
Phone: 773-327-1022
Fax: 773-327-1054
Hanger Orthopedic Group
4801 W. Peterson Ave. Suite 618
Chicago, IL 60646
Phone: 773-777-9494
Fax: 773-777-1310
*Visit the website for other locations.
Keller Orthotics
2451 N. Lincoln Ave.
Chicago, IL 60614
Phone: 773-929-4700
Fax: 773-929-4725
*Visit the website for other locations.
MD Orthotic and Prothstecic Lab
10406 S Western Ave
Chicago, IL 60643
Phone: 773-779-5896
Main Phone: 888-635-2271
Main Fax: 888-635-3135
*Visit the website for other locations.
Rehabilitation Institute of Chicago Orthotics
345 E. Superior St., Rm 1764
Chicago, IL 60611
Phone: 312-238-2810
Fax: 312-238-1932
Scheck and Siress
Chicago-Lincoln Park
2551 N. Clark St. Suite 200
Phone: 773-472-3663
Fax: 773-472-3668
*Visit the website for other locations.
Driving Rehabilitation Programs
Alexian Brothers Rehabilitation Hospital
935 Beisner Rd.
Elk Grove Village, IL 60007
Description: Program is available on Tuesdays, Thursdays and Fridays. One hour is spent with an occupational therapist; one and a half hours are spent behind the wheel (BTW); and one half hour is a meeting and evaluation with both instructors.
Evanston Northwestern Healthcare System
1000 Central St., Suite 101
Evanston, IL 60201
Phone: 847-570-1260
Description: Program is available Mondays - Thursdays. Two hours are spent with an occupational therapist and one and one half hours BTW
Marianjoy Rehabilitation Hospital: Oakbrook Terrace
17W682 Butterfield Rd.
Oakbrook Terrace, IL 60181
Phone: 630-268-1394
Description: Three hour evaluation includes clinical and BTW.
Marianjoy Rehabilitation Hospital: Wheaton Campus
26W171 Roosevelt Rd.
Wheaton, IL 60187
Phone: 630-909-6080
Description: Three hour evaluation includes clinical and BTW. A low vision program is also available at this location.
Paulson Rehabilitation Center
619 Plainfield Rd.
Willowbrook, IL 60527
Phone: 630-856-8200
Description: Program offered on Tuesdays. Three hour evaluation includes clinical and BTW.
Provena St. Joseph Medical Center
825 A Sharp Drive
(corner of Black and 59)
Shorewood, IL 60431
Phone: 815-741-7416
Description: Program is offered Mondays-Fridays and includes one and one half hours of clinical evaluation. BTW component is done separately.
Resurrection Medical Center
7411 W. Talcott
Chicago, IL 60631
Phone: 773-594-7858
Description: Program is offered Mondays-Fridays and includes a clinical evaluation. BTW is done separately. Driver must be able to transfer into vehicle independently.
*Visit the website for other locations.
Special Needs Legal Assistance
The Arc of Illinois
Phone: 800-588-7002
*Search for advocacy and legal assistance.
Family Benefits Solutions
1110 W. Lake Cook Rd.
Buffalo Grove, IL 60089
Phone: 847-279-8506
Health and Disability Advocates
205 W. Monroe
Chicago, IL 60603
Phone: 312-223-9600
Life's Plan, Inc.
2801 Finley Rd.
Downers Grove, IL 60515
Phone: 630-628-7196
The Law Offices of Brian Rubin and Associates
55 W. Monroe
Chicago, IL 60603
Phone: 312-419-0252
Law Office Of Teresa Nuccio & Associates, P.C.
1460 Renaissance Drive, Suite 105
Park Ridge, IL 60068
Phone: 847-823-9576
Nash Disability Law
8 S. Michigan Ave.
Chicago, IL 60603
Phone: 800-322-6274
Spain Spain & Varnet P.C.
33 North Dearborn Street
Chicago, IL 60602
Phone: 312-220-9112
Waypoint Estate and Business Planning
Donald Olsen
103 Schelter Road, Suite 10
Lincolnshire, IL 60069
Phone: 847-276-2640
National Academy of Elder Law Attorneys, Inc.
Special Needs Alliance
Phone: 877-572-8472
Special Education Attorneys
Mary Denise Cahill
Naperville, Illinois
Phone: 630-778-6500
Charlie Fox
Northbrook, Illinois
Phone: 847-205-9897
SSI and Medicaid Resources
Department of Human Services
Phone: 800-843-6154
Family Benefits Solutions, Inc.
1110 W. Lake Cook Rd.
Buffalo Grove, IL 60089
Phone: 847-279-8506
Contact Sheri Schneider
Health and Disability Advocates
205 W. Monroe, Suite 300
Chicago, IL 60606
Phone: 312-223-9600
Contact Health and Disability Advocates
Social Security Administration
Phone: 800-772-1213
Other Links
Links to services and agencies that may be of interest.
Care Pages
CarePages are free, easy-to-use Web pages that help family and friends communicate when a loved one is receiving care. It takes just a few minutes to create a CarePage, share it with friends and family, and build a community of support.
Disaboom
The mission of Disaboom is to "create the first comprehensive, evolving source of information,
insight, and personal engagement for the disability community."
Easy Access Chicago
Easy Access Chicago provides information on the accessibility of over 100 Chicagoland attractions and transportation methods.
Lifestyle Accelerator
Lifestyle Accelerator offers resources to the Spina Bifida community spanning a wide range of topics, from medical to fashion.
Product reviews, videos, forums and blogs are also available.
MDJunction
MDJunction is a health community focused on becoming a free center for Online Support Groups.
mdjunction.com/permanently-disabled
Parent Advocacy Coalition for Educational Rights (PACER)
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
What's New at SBAIL
- 2010 Fall Swing for Spina Bifida
- SBAIL's Summer Sendoff
- Winter 2010 Newsletter
- Central Illinois Support Group Meeting
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