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The Illinois Spina Bifida Association works to improve the quality of life of individuals and families affected by Spina Bifida.
For more information or to participate in these programs, please call us at (773) 444-0305 or get in touch with us from our contact page.
Some of these programs include:
Camp Independence is run by the YMCA of Metro Chicago in association with the Illinois Spina Bifida Association. It is an overnight camp designed especially for children and young adults with Spina Bifida. Campers are encouraged to learn self-care while at the camp, develop new friendships and social relationships, and try new adaptive sports.
YMCA Camp Duncan and YMCA Camp Independence offer great summer camp opportunities and experiences for all ages. To register, please review and complete the forms below.
For more information, e-mail Rona Roffey at firstname.lastname@example.org.
The Central Illinois Support Group is a small group of parents, kids, and young adults with Spina Bifida, who meet informally once per month.
Meetings are typically held at at 6:45pm on the third Thursday of each month at the OSF-College Ave meeting room, 1701 E. College Avenue, Bloomington (Map - enter rear of building by Convenient Care entrance.) The format varies from speakers to just informal networking.
Thursday, March 20
OSF-College Ave. meeting room
Mike Donovan will do a self-defense presentation.
Thursday, April 17
Thursday, May 15
RSVP to Lynn at email@example.com.
Financial assistance for braces, therapy, equipment, and urological supplies (Illinois residents with Spina Bifida only).
- Money given is for the direct benefit of the individual affected by Spina Bifida.
- Applicant needs to prove that he or she (or parent (s)) is unable to pay for this request.
- Money is not paid to an individual. Money will be paid directly to vendor/supplier.
- Required documentation must be from medical professional, equipment company, etc.
- No medication is covered with the exception of urological medications.
- All money granted will be in accordance with generally accepted accounting principles (GAAP) and will be audited in accordance with generally accepted auditing standards (GAAS) by an independent CPA.
The Holiday Party is a winter favorite for the families of ISBA. Held each year in December, children with Spina Bifida and their siblings, ages 14 and under, receive a gift and have the opportunity to visit Santa. Parents and children alike will have the opportunity to network with old friends and meet new ones.
Play Date is an afternoon party for young children with Spina Bifida, their siblings and their parents
It is an opportunity for the children to play in a safe and accessible environment while allowing parents to network with other parents, share information, learn about resources, and hear speakers on relevant topics.
Thank you to our families who participated in the Child and Parent Conference on March 1! Find pictures of the day here
Shriners Hospitals for Children-Chicago
2211 N. Oak Park Ave, Chicago (MAP)
RSVP REQUIRED to 773-444-0305 or firstname.lastname@example.org for Play Date events.
Check back in 2014 as we develop our next professional symposium. Thank you for your interest.
If you're interested in meeting other individuals and families affected by Spina Bifida in the Rockford area, contact us at 773-444-0305 or email@example.com.
Illinois adults with Spina Bifida are invited to apply for ISBA's educational scholarships -- including college, university, technical schools or online/continuing education. Applications for 2013-2014 were due July 1st. The 2014-2015 scholarship application will be posted in spring 2014.
Scholarships include the Patrick Juris Scholarship, a $3,000 scholarship for students pursuing a graduate degree for a career in service to others, and the Valiant Scholarship, a $2,500 scholarship awarded to the applicant who demonstrates the best ability and most experience to help others with Spina Bifida.
Families and individuals affected by Spina Bifida are invited to join us at the Southern Illinois Support Group.
Tuesday, March 25 6:30-7:30pm
Carbondale Public Library
405 W. Main Street, Carbondale (MAP)
Learn about vocational planning and independence with Mike Langan from the Rehabilitation Institute at Southern Illinois University.
RSVP to 773-444-0305 or firstname.lastname@example.org.
Families and individuals affected by Spina Bifida are invited to join us at the Southwest Suburban Support Group.
Thanks to all those who joined us for the Joliet movie outing. Contact us at email@example.com or 773-444-0305 for more info.
Families and individuals affected by Spina Bifida are invited to join us at the Western Illinois Support Group.
Saturday, March 22, 10am
Children's Therapy Center of the Quad Cities
1504 13th Avenue, Moline (MAP)
Chiropractor Dr. Chris Beckwith will present information about chiropractic medicine.
RSVP to 773-444-0305 or firstname.lastname@example.org
ISBA and the Western DuPage Special Recreation Association (WDSRA) are co-hosting the West Suburban Support Group. Meeting times will be from 1:30-3:30pm.
Meetings are held at: Ackerman Sports & Fitness Center, 800 W St. Charles Road, Glen Ellyn, IL (MAP)
The Ackerman Sports and Fitness Center is located off St. Charles Road at the Riford stoplight.
Next meeting date:
Saturday, March 8, 1:30-3:30pm
Wheelchair Basketball is the name of the game today. We will spend part of the day with the Windy City Warriors and their coaching staff as we participate in drills and even some games. Even if basketball is not your thing, come on out and meet our team and talk to them about how basketball and other sports we offer has changed their lives. The other part of the day we will do some other "ball" type of activities. We will also provide a wide array of craft activities.
RSVP to 773-444-0305 or email@example.com.
Future meeting dates: