1011 Lake Street, Suite 406, Oak Park, IL 60301 | 773-444-0305   

ISBA Programs

The Illinois Spina Bifida Association works to improve the quality of life of individuals and families affected by Spina Bifida.

For more information or to participate in these programs, please call us at (773) 444-0305 or get in touch with us from our contact page.

Some of these programs include:

Camp Independence

Central Illinois Support Group

Emergency Financial Assistance

Holiday Party

Peoria Support Group

Play Date

Professional Symposium

Rockford Support Group

Scholarships

Southern Illinois Support Group

Southwest Suburban Support Group

Western Illinois Support Group

West Suburban Support Group

 

Camp Independence

Camp Independence is run by the YMCA of Metro Chicago in association with the Illinois Spina Bifida Association. It is an overnight camp designed especially for people with Spina Bifida. Campers are encouraged to learn self-care while at the camp, develop new friendships and social relationships, and try new adaptive sports.

Camp Independence offers great summer camp opportunities and experiences for all ages. To register for a summer 2014 session, please review and complete the forms below.

Registration form
Financial Assistance form
Camp Mentors Program Information

For more information, call 847.546.8086.


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Central Illinois Support Group

The Central Illinois Support Group is a small group of parents, kids, and young adults with Spina Bifida, who meet informally once per month.

Meetings are typically held at at 6:45pm on the third Thursday of each month at the OSF-College Ave meeting room, 1701 E. College Avenue, Bloomington (Map - enter rear of building by Convenient Care entrance.) The format varies from speakers to just informal networking.

Next meeting:

Thursday, May 15

Julian Lin, MD will present new developments in Spina Bifida care.

RSVP to Lynn at lynn.bradtke@comcast.net.

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Emergency Assistance Funds

Financial assistance for braces, therapy, equipment, and urological supplies (Illinois residents with Spina Bifida only).

Guidelines:

  • Money given is for the direct benefit of the individual affected by Spina Bifida.
  • Applicant needs to prove that he or she (or parent (s)) is unable to pay for this request.
  • Money is not paid to an individual. Money will be paid directly to vendor/supplier.
  • Required documentation must be from medical professional, equipment company, etc.
  • All money granted will be in accordance with generally accepted accounting principles (GAAP) and will be audited in accordance with generally accepted auditing standards (GAAS) by an independent CPA.

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Holiday Party

The Holiday Party is a winter favorite for the families of ISBA. Held each year in December, children with Spina Bifida and their siblings, ages 14 and under, receive a gift and have the opportunity to visit Santa. Parents and children alike will have the opportunity to network with old friends and meet new ones.

Check out the 2013 Family Holiday Party photos

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Peoria Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Peoria Support Group.

Please check back for future meeting dates and topics.

RSVP to 773-444-0305 or info@i-sba.org for this event.

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Play Date

Play Date is an afternoon party for young children with Spina Bifida, their siblings and their parents

It is an opportunity for the children to play in a safe and accessible environment while allowing parents to network with other parents, share information, learn about resources, and hear speakers on relevant topics.

Thank you to our families who participated in the Child and Parent Conference on March 1! Find pictures of the day here

Shriners Hospitals for Children-Chicago
2211 N. Oak Park Ave, Chicago (MAP)

RSVP REQUIRED to 773-444-0305 or info@i-sba.org for Play Date events.

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Professional Symposium

Thank you to the presenters and participants of our 2013 Professional Symposium.

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Rockford Support Group

If you're interested in meeting other individuals and families affected by Spina Bifida in the Rockford area, contact us at 773-444-0305 or info@i-sba.org.

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Scholarship Fund

Illinois adults with Spina Bifida are invited to apply for ISBA's educational scholarships -- including college, university, technical schools or online/continuing education. Applications for the 2014-2015 school year will be posted in spring 2014.

ISBA is honored to host the Patrick Juris Scholarship for students pursuing careers in service to others.

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Southern Illinois Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Southern Illinois Support Group.

Check back for more details about our June meeting.

RSVP to 773-444-0305 or info@i-sba.org.

Future meeting dates:
Thursday, June 24

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Southwest Suburban Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Southwest Suburban Support Group.

Thanks to all those who joined us for the Joliet movie outing. Contact us at info@i-sba.org or 773-444-0305 for more info.

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Western Illinois Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Western Illinois Support Group.

Thank you to everyone who attended our March meeting!

RSVP to 773-444-0305 or info@i-sba.org

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West Suburban Support Group

ISBA and the Western DuPage Special Recreation Association (WDSRA) are co-hosting the West Suburban Support Group. Meeting times will be from 1:30-3:30pm.

Meetings are held at: Ackerman Sports & Fitness Center, 800 W St. Charles Road, Glen Ellyn, IL (MAP)

The Ackerman Sports and Fitness Center is located off St. Charles Road at the Riford stoplight.

Next meeting date:

Saturday, May 10, 1:30-3:30pm
Come explore adaptive climbing at the Ackerman climbing wall!  This activity will be professionally supervised, and in order to have adequate staff on hand. We will also offer crafts as an alternative activity.

RSVP REQUIRED by May 1 to 773-444-0305 or info@i-sba.org.

Future meeting dates:
July 12
August 9
November 8

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