2211 N Oak Park Avenue, Chicago, IL 60707| 773-444-0305   

ISBA Programs

The Illinois Spina Bifida Association works to improve the quality of life of individuals and families affected by Spina Bifida.

For more information or to participate in these programs, please call us at (773) 444-0305 or get in touch with us from our contact page.

Some of these programs include:

Camp Independence

Central Illinois Support Group

Chicago Adult Group

Emergency Financial Assistance

Holiday Party

Northwest Suburban Illinois Support Group

Peoria Support Group

Play Date

Professional Symposium

Rockford Support Group

Scholarships

Southern Illinois Support Group

Southwest Suburban Support Group

Western Illinois Support Group

West Suburban Support Group

 

Camp Independence

Camp Independence is run by the YMCA of Metro Chicago in association with the Illinois Spina Bifida Association. It is an overnight camp designed especially for people with Spina Bifida. Campers are encouraged to learn self-care while at the camp, develop new friendships and social relationships, and try new adaptive sports.

Camp Independence offers a winter retreat for adults 18 and over on December 12-14, 2014. For more information and to register, please review and complete the forms below.

Weekend Retreat Registration Form 

Adult Winter Retreat Information

Camp Mentors Program Information

Save the dates:

February 6-8, 2015 - winter program for 13-17 year olds.

March 6-8, 2015 - winter program for 7-12 year olds.

For more information, call 847.546.8086.


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Central Illinois Support Group

The Central Illinois Support Group is a small group of parents, kids, and young adults with Spina Bifida, who meet informally once per month.

Meetings are typically held at at 6:45pm on the third Thursday of each month at the OSF-College Ave meeting room, 1701 E. College Avenue, Bloomington (Map - enter rear of building by Convenient Care entrance.) The format varies from speakers to just informal networking.

Next Meeting:

  • The next meeting will be Thursday, October 16, 6:45pm, at the OSF College Ave meeting room. Belinda Coyle from Coloplast will be speaking.

To RSVP or for more info, contact Lynn at lynn.bradtke@comcast.net.

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Chicago Adult Group

The Chicago Adult Group is for any adult with Spina Bifida, regardless of where you live. The first event is Saturday, November 8 at Navy Pier in Chicago. Lunch at Capi's Italian Kitchen from 1130am to 1pm. IMAX movie starting at 1:15pm. The movie is free, participants will purchase their own food and drinks. You can attend lunch, the movie or both.

RSVP is required to 773.444.0305 or aimee@i-sba.org.

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Emergency Assistance Funds

Financial assistance for braces, therapy, equipment, and urological supplies (Illinois residents with Spina Bifida only).

Guidelines:

  • Money given is for the direct benefit of the individual affected by Spina Bifida.
  • Applicant needs to prove that he or she (or parent (s)) is unable to pay for this request.
  • Money is not paid to an individual. Money will be paid directly to vendor/supplier.
  • Required documentation must be from medical professional, equipment company, etc.
  • All money granted will be in accordance with generally accepted accounting principles (GAAP) and will be audited in accordance with generally accepted auditing standards (GAAS) by an independent CPA.

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Holiday Party

The Holiday Party is a winter favorite for the families of ISBA. Held each year in December, children with Spina Bifida and their siblings, ages 14 and under, receive a gift and have the opportunity to visit Santa. Parents and children alike will have the opportunity to network with old friends and meet new ones. The 2014 Holiday Party will take place on Saturday, December 6.

Check out the 2013 Family Holiday Party photos

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Northwest Suburban Illinois Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Northwest Suburban Illinois Support Group.

For more information, contact 773-444-0305 or info@i-sba.org.

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Peoria Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Peoria Support Group.

The support group meets on the second Monday of each month from 4-6pm at the Children's Hospital of Illinois, 420 N.E. Glen Oak, Suite 201, Peoria.

Food and drink will be provided.

RSVP to 773-444-0305 or info@i-sba.org.

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Play Date

Play Dates combine an informational and networking session for parents with structured play activities for children with Spina Bifida, their siblings and their parents.

Children have an opportunity to play in a safe and accessible environment while allowing parents to network with other parents, share information, learn about resources, and hear speakers on relevant topics.

Next Meeting:

  • Halloween Play Date: October 25, Shriners Hospitals for Children - Chicago, 2211 N. Oak Park Ave, Chicago (MAP).

    Join us for a Halloween costume parade and a presentation by Lekotek on therapeutic PLAY-based family sessions

RSVP REQUIRED to 773-444-0305 or info@i-sba.org for Play Date events.

Thank you to our families who participated in the Child and Parent Conference on March 1! Find pictures of the day here

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Professional Symposium

Thank you to the presenters and participants of our 2013 Professional Symposium.

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Rockford Support Group

If you're interested in meeting other individuals and families affected by Spina Bifida in the Rockford area, contact us at 773-444-0305 or info@i-sba.org.

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Scholarships

Illinois adults with Spina Bifida are invited to apply for ISBA's educational scholarships. Click here for the 2014-2015 scholarship application.

Applications must be postmarked by July 9.

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Southern Illinois Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Southern Illinois Support Group.

For more information, contact 773-444-0305 or info@i-sba.org.

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Southwest Suburban Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Southwest Suburban Support Group.

Contact us at info@i-sba.org or 773-444-0305 for more info.

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Western Illinois Support Group

Families and individuals affected by Spina Bifida are invited to join us at the Western Illinois Support Group.

For more info contact 773-444-0305 or info@i-sba.org

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West Suburban Support Group

ISBA and the Western DuPage Special Recreation Association (WDSRA) co-host the West Suburban Support Group.

For more info contact 773-444-0305 or info@i-sba.org

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